Browsing Tag

GSD

expect miracles
Bitch’in Life

Expect Miracles – The Bitch’in Challenge, Week 4

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When I started the Bitch’in Challenge three weeks ago, I laid down the gauntlet and dared you to join me in working on ONE THING about yourself that you want to shift. This post, the last in a four-week series, was to be all about being the change in order to make all the work you’ve done permanent.

I had a little quandary, though, about the timing of the end of this Bitch’in Challenge four-week series: for the past two years, my holiday post has been about two amazing now eight-year-old boys: Dylan Siegel and Jonah Pournazarian. Dylan wrote a book called Chocolate Bar when he was in first grade — his goal was to raise $1,000,000 and find a cure for Jonah’s rare disease, Glycogen Storage Disease 1b. Jonah was both muse and sales manager; back in 2012 when I first interviewed the lads, they’d amazingly raised $10,000 by selling books at an event at their school. Then I followed up last December, and the boys were halfway to their goal ($500,000). What originally was a heart-warming local story about a couple of great kids and their families had become a global phenomenon that had gotten tons of press and attention, won the boys some awards, and incredibly was building over time, not subsiding.

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Chocolate Bar book -- the ultimate in giving spirit
Bitch’in Life

How to Change the World — Inspiration from Chocolate Bar Book

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Just about a year ago, my BBF told me about two little boys in her first grade class who embodied the giving spirit. Dylan Siegel had written a book called, “Chocolate Bar” with the intention of raising $1,000,000 to find a cure for his friend Jonah Pournazarian’s rare liver disease, Glycogen Storage Disease 1B. In my opinion, nothing’s more bitch’in than stepping up and taking action, so I interviewed the Chocolate Bar Book boys to find out more. Much has changed since then, and now it’s not just a nice local story about a couple of great kids and their families; it’s become a global phenomenon that just shows to go ya that one little kernel of kindness can change the entire world.

Bitch’in Suburbia (BIS): It’s been about a year since we last spoke — how goes the fundraising for the cure? How much have you raised?

Dylan Siegel (DS): Almost $500,000.

BIS: All on $20 books?

DS: Well, we also have bracelets and some other stuff now.

Jack Siegel (Dylan’s brother): I once sold a chocolate bar to a lady for $30!

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Curing a disease is so chocolate bar!
Best o’ the Bitch, BIS Sez, Parenting

The Best $20 Gift You Can Give — Chocolate Bar Book

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This week’s Bitch’in Suburbia post was supposed to be a holiday gift guide — that is until a friend handed me a book one of her students had written. By the time I finished reading it, I realized that there was only one present I’d endorse this year: Chocolate Bar book. It’s a delicious read, with a fantastically creative catchphrase, and a kicker that can’t be beat: it was written by first grader Dylan Siegel to raise money for his best friend Jonah Pournazarian, who has a rare liver condition called Glycogen Storage Disease (GSD 1B). I wanted to know more about the author, his BFF/muse/inspiration, and why this book so perfectly embodies the giving spirit.

Bitch’in Suburbia (BIS): So how did you guys meet? Seems like you go back a long time.

Dylan Siegel (DS): Preschool. Mommy & Me, I think.

BIS: You might be the first writer to meet his muse at a Mommy & Me group. So tell me about what Jonah has.

DS: It’s… he gets a lot of shots.

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